Diaphragm Pacing CH 01-Diaphragm Pacing

July 92010

Sheila Kun
Nurse Case Manager Pediatric Pulminology
skun@chla.usc.edu

CCHS
Congenital Central Hypoventilation Syndrome
congenital central hypoventilation syndrome (CCHS) or primary alveolar hypoventilation, is a respiratory disorder that is fatal if untreated. Persons afflicted with Ondine’s curse classically suffer from respiratory arrest during sleep.

Persons who have CCHS get it at birth, or develop it due to severe neurological trauma/damage to the brainstem. The diagnosis may be delayed because of variations in the severity of the manifestations or lack of awareness in the medical community, particularly in milder cases. (Chin, 2006).[1]

This very rare and serious form of central sleep apnea involves an inborn failure of autonomic control of breathing. About 1 in 200,000 live born children have the condition. In 2006, there were only about 200 known cases worldwide. In all cases, episodes of apnea occur in sleep, but in a few patients, at the most severe end of the spectrum, apnea also occurs while awake.

A persons gender or race is not a determining factor when dealing with susceptibility to CCHS. Males and females are both affected equally and a person’s ethnicity, as of this point, has been not been coincided a variable to the disease.

Duration : 0:4:18

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12 Natural Treatment Tips for Insomnia, Sleep Apnea, and other Sleep Disorders!

June 302010

Sleep is the natural state of bodily rest. When you sleep, your body rests and restores its energy levels. Consistently good sleep helps you cope with stress, solve problems and recover from illness, and helps ensure long-term physical and mental well-being.

* Infants require about 16 hours a day
*Teenagers need about 9 hours on average
* Most adults need 7 to 8 hours a night for the best amount of sleep, although some people may need as few as 5 hours or as many as 10 hours of sleep each day
*Women in the first 3 months of pregnancy often need several more hours of sleep than usual

Recommendations
You can optimize your health and quality of sleep by:

1) Reversing Damage – Years of stressful living caused damage to your body and mind. To help reverse this, Mystic Sleep releases hundreds of phytonutrients that act at the molecular level to normalize hormone levels, support brain function, alleviate mental duress, remove toxins, restore your immune system, and reinstate healthy sleep cycle.

2) Set a Schedule – Go to bed at a set time each night and get up at the same time each morning. Disrupting this schedule may lead to insomnia. Avoid napping during the day. “Sleeping in” on weekends also makes it harder to wake up early on Monday morning because it re-sets your sleep cycles for a later awakening.

3) Exercise – Try to exercise 20 to 30 minutes a day. Daily exercise often helps people sleep, although a workout soon before bedtime may interfere with sleep. For maximum benefit, try to get your exercise about 5 to 6 hours before going to bed.

4) Avoid Caffeine, Nicotine, and Alcohol – Avoid drinks that contain caffeine, which acts as a stimulant and keeps you awake. Sources of caffeine include coffee (100-200 mg), soft drinks (50-75 mg), non-herbal teas (50-75 mg), chocolate, diet drugs, and some pain relievers. Smokers tend to sleep very lightly and often wake up in the early morning due to nicotine withdrawal. Alcohol robs people of deep sleep and REM sleep and keeps them in the lighter stages of sleep.

5) Avoid Using Sedatives – While you might fall asleep, the complete restorative sleep cycle will be not realized. You might awaken feeling unrefreshed, groggy, or hungover. Once you stop taking the sedatives, you might suffer withdrawal symptoms which will further interfere with attainment of natural sleep.

6) Drink Milk – Milk contains a substance called tryptophan. The body uses tryptophan to make serotonin, a chemical in the brain. Serotonin helps control sleep patterns, appetite, pain, and other functions. Milk does not contain enough tryptophan to change sleep patterns, but drinking a glass of milk before bed may help you relax.

7) Avoid Large Meals / Excessive Fluids – This might cause you to awaken due digestion problems or urination.

8) Relax before Bed – A warm bath, reading, or another relaxing routine (deep breathing, yoga, meditation) can make it easier to fall sleep. You can train yourself to associate certain restful activities with sleep and make them part of your bedtime ritual.

9) Don’t Lie in Bed Awake – If you can’t get to sleep, don’t just lie in bed. Do something else, like reading, watching television, or listening to music, until you feel tired. The anxiety of being unable to fall asleep can actually contribute to insomnia. Don’t expose yourself to content that is prone to increase anxiety – like the news.

10) Create a Sanctuary – Make sure your bedroom is dark and quiet. Use eye shades or earplugs if needed. Maintain a comfortable temperature in the bedroom. Extreme temperatures may disrupt sleep or prevent you from falling asleep.

11) Minimize Snoring – Sleep on your side to minimize snoring and breathing problems.

12) Sleep until Sunlight – If possible, wake up with the sun, or use very bright lights in the morning. Sunlight helps the body’s internal biological clock reset itself each day. Sleep experts recommend exposure to an hour of morning sunlight for people having problems falling asleep.

Mystic Sleep stops the cycle of sleep problems. It increases production of melatonin which keeps your circadian rhythm in tune, thwarts the production of cortisol (the “stress hormone” which at elevated levels prevents sleep), regulates cyclical nocturnal surges of growth hormones which interfere with your sleep cycle, stimulates production of neurotransmitters to alleviate irritation and depression caused by insufficient rest, releases antioxidants to combat free radical damage and inhibit deterioration of brain function, supports liver and metabolic processes to remove toxins from your body, aids in production of Leptin which reduces your craving for excessive calories (Leptin is depleted by lack of sleep thus increasing chances of obesity), introduces bio-enhancers to increase availability of nutritional substances to help restore your body’s immune system, and counteracts tension and high blood pressure.

Duration : 0:5:49

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Home Mechanical Ventilation CH 02-HMV Considerations

June 262010

Sheila Kun
Nurse Case Manager Pediatric Pulminology
skun@chla.usc.edu

CCHS
Congenital Central Hypoventilation Syndrome
congenital central hypoventilation syndrome (CCHS) or primary alveolar hypoventilation, is a respiratory disorder that is fatal if untreated. Persons afflicted with Ondine’s curse classically suffer from respiratory arrest during sleep.

Persons who have CCHS get it at birth, or develop it due to severe neurological trauma/damage to the brainstem. The diagnosis may be delayed because of variations in the severity of the manifestations or lack of awareness in the medical community, particularly in milder cases. (Chin, 2006).[1]

This very rare and serious form of central sleep apnea involves an inborn failure of autonomic control of breathing. About 1 in 200,000 live born children have the condition. In 2006, there were only about 200 known cases worldwide. In all cases, episodes of apnea occur in sleep, but in a few patients, at the most severe end of the spectrum, apnea also occurs while awake.

A persons gender or race is not a determining factor when dealing with susceptibility to CCHS. Males and females are both affected equally and a person’s ethnicity, as of this point, has been not been coincided a variable to the disease.

Duration : 0:5:22

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Sleep Apnea Information – Could My Snoring Be Something More

May 112010

Take the Sleep Apnea Test Today at http://www.mysleeptest.com.

When you breath normally, air passes through the nose and past the flexible structures in the back of the throat (the soft palate, uvula, and tongue). While you are awake the muscles hold the airway open. When you fall asleep, these muscles relax, but usually, the airway stays open.

http://www.mysleeptest.com

Duration : 0:0:37

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Home Mechanical Ventilation CH 06-Clinic Visits

May 12010

Sheila Kun
Nurse Case Manager Pediatric Pulminology
skun@chla.usc.edu

CCHS
Congenital Central Hypoventilation Syndrome
congenital central hypoventilation syndrome (CCHS) or primary alveolar hypoventilation, is a respiratory disorder that is fatal if untreated. Persons afflicted with Ondine’s curse classically suffer from respiratory arrest during sleep.

Persons who have CCHS get it at birth, or develop it due to severe neurological trauma/damage to the brainstem. The diagnosis may be delayed because of variations in the severity of the manifestations or lack of awareness in the medical community, particularly in milder cases. (Chin, 2006).[1]

This very rare and serious form of central sleep apnea involves an inborn failure of autonomic control of breathing. About 1 in 200,000 live born children have the condition. In 2006, there were only about 200 known cases worldwide. In all cases, episodes of apnea occur in sleep, but in a few patients, at the most severe end of the spectrum, apnea also occurs while awake.

A persons gender or race is not a determining factor when dealing with susceptibility to CCHS. Males and females are both affected equally and a person’s ethnicity, as of this point, has been not been coincided a variable to the disease.

Duration : 0:4:1

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Diaphragm Pacing CH 05-Jim’s Story

April 292010

Sheila Kun
Nurse Case Manager Pediatric Pulminology
skun@chla.usc.edu

CCHS
Congenital Central Hypoventilation Syndrome
congenital central hypoventilation syndrome (CCHS) or primary alveolar hypoventilation, is a respiratory disorder that is fatal if untreated. Persons afflicted with Ondine’s curse classically suffer from respiratory arrest during sleep.

Persons who have CCHS get it at birth, or develop it due to severe neurological trauma/damage to the brainstem. The diagnosis may be delayed because of variations in the severity of the manifestations or lack of awareness in the medical community, particularly in milder cases. (Chin, 2006).[1]

This very rare and serious form of central sleep apnea involves an inborn failure of autonomic control of breathing. About 1 in 200,000 live born children have the condition. In 2006, there were only about 200 known cases worldwide. In all cases, episodes of apnea occur in sleep, but in a few patients, at the most severe end of the spectrum, apnea also occurs while awake.

A persons gender or race is not a determining factor when dealing with susceptibility to CCHS. Males and females are both affected equally and a person’s ethnicity, as of this point, has been not been coincided a variable to the disease.

Duration : 0:8:14

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Home Mechanical Ventilation CH 04-The Home Stretch

April 132010

Sheila Kun
Nurse Case Manager Pediatric Pulminology
skun@chla.usc.edu

CCHS
Congenital Central Hypoventilation Syndrome
congenital central hypoventilation syndrome (CCHS) or primary alveolar hypoventilation, is a respiratory disorder that is fatal if untreated. Persons afflicted with Ondine’s curse classically suffer from respiratory arrest during sleep.

Persons who have CCHS get it at birth, or develop it due to severe neurological trauma/damage to the brainstem. The diagnosis may be delayed because of variations in the severity of the manifestations or lack of awareness in the medical community, particularly in milder cases. (Chin, 2006).[1]

This very rare and serious form of central sleep apnea involves an inborn failure of autonomic control of breathing. About 1 in 200,000 live born children have the condition. In 2006, there were only about 200 known cases worldwide. In all cases, episodes of apnea occur in sleep, but in a few patients, at the most severe end of the spectrum, apnea also occurs while awake.

A persons gender or race is not a determining factor when dealing with susceptibility to CCHS. Males and females are both affected equally and a person’s ethnicity, as of this point, has been not been coincided a variable to the disease.

Duration : 0:5:59

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Diaphragm Pacing CH 02-Monique’s Story

April 42010

Sheila Kun
Nurse Case Manager Pediatric Pulminology
skun@chla.usc.edu

CCHS
Congenital Central Hypoventilation Syndrome
congenital central hypoventilation syndrome (CCHS) or primary alveolar hypoventilation, is a respiratory disorder that is fatal if untreated. Persons afflicted with Ondine’s curse classically suffer from respiratory arrest during sleep.

Persons who have CCHS get it at birth, or develop it due to severe neurological trauma/damage to the brainstem. The diagnosis may be delayed because of variations in the severity of the manifestations or lack of awareness in the medical community, particularly in milder cases. (Chin, 2006).[1]

This very rare and serious form of central sleep apnea involves an inborn failure of autonomic control of breathing. About 1 in 200,000 live born children have the condition. In 2006, there were only about 200 known cases worldwide. In all cases, episodes of apnea occur in sleep, but in a few patients, at the most severe end of the spectrum, apnea also occurs while awake.

A persons gender or race is not a determining factor when dealing with susceptibility to CCHS. Males and females are both affected equally and a person’s ethnicity, as of this point, has been not been coincided a variable to the disease.

Duration : 0:4:15

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Home Mechanical Ventilation CH 07-Ashley’s Story

March 172010

Sheila Kun
Nurse Case Manager Pediatric Pulminology
skun@chla.usc.edu

CCHS
Congenital Central Hypoventilation Syndrome
congenital central hypoventilation syndrome (CCHS) or primary alveolar hypoventilation, is a respiratory disorder that is fatal if untreated. Persons afflicted with Ondine’s curse classically suffer from respiratory arrest during sleep.

Persons who have CCHS get it at birth, or develop it due to severe neurological trauma/damage to the brainstem. The diagnosis may be delayed because of variations in the severity of the manifestations or lack of awareness in the medical community, particularly in milder cases. (Chin, 2006).[1]

This very rare and serious form of central sleep apnea involves an inborn failure of autonomic control of breathing. About 1 in 200,000 live born children have the condition. In 2006, there were only about 200 known cases worldwide. In all cases, episodes of apnea occur in sleep, but in a few patients, at the most severe end of the spectrum, apnea also occurs while awake.

A persons gender or race is not a determining factor when dealing with susceptibility to CCHS. Males and females are both affected equally and a person’s ethnicity, as of this point, has been not been coincided a variable to the disease.

Duration : 0:5:44

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